THE OSTEOPETROSIS SUPPORT TRUST
- Charity number
- 1013052
- Status
- Registered
- Type
- Trust
- Registered
- 21 July 1992
- Latest income
- £75
- Latest spending
- £382
- Accounts to
- 5 April 2025
- Address
- Blue Haze, Notch Road, Winstone, CIRENCESTER
What it does
OUR MAIN AIM IS TO PROVIDE SUPPORT AAND INFORMATION FOR FAMILIES AFFECTED BY THE SEVERE FORM OF THE DISEASE CALLED MALIGNANT INFANTILE OSTEOPETROSIS. WE ALSO PUT FAMILIES IN TOUCH WITH OTHER AFFECTED FAMILIES, ARRANGE MEETINGS TO DISCUSS RELEVANT ISSUES AND RESEARCH AND DEVELOPMENTS ETC. PROVIDE SMALL GRANTS AND SUPPORT RESEARCH INTO THE DISEASE.
In the charity's own words, as filed with the Commission.
About this record
From the Charity Commission's register of England and Wales, republished nightly under the Open Government Licence. The Commission does not regulate Scotland or Northern Ireland, which keep their own registers. Figures are as the charity last filed them, not as audited by us — browse the whole register, including the charities removed from it.