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BATTEN DISEASE FAMILY ASSOCIATION

This charity is no longer on the register, removed on 11 December 2025. A removal is usually a charity that wound up, merged, or fell below the income threshold, and is not in itself a finding against anyone — but an appeal still quoting this number today is quoting a charity the Commission no longer registers.

Charity number
1084908
Status
Removed
Type
Other
Registered
7 February 2001
Removed
11 December 2025
Latest income
£438,139
Latest spending
£419,965
Accounts to
31 August 2024

What it does

A supportive, informative, national networking organisation for the families, carers and professionals giving care to children and adults with Batten Disease and for promoting awareness of, and research into, the disease

In the charity's own words, as filed with the Commission.

About this record

From the Charity Commission's register of England and Wales, republished nightly under the Open Government Licence. The Commission does not regulate Scotland or Northern Ireland, which keep their own registers. Figures are as the charity last filed them, not as audited by us — browse the whole register, including the charities removed from it.