CDKL5 UK
This charity is no longer on the register, removed on 17 June 2024. A removal is usually a charity that wound up, merged, or fell below the income threshold, and is not in itself a finding against anyone — but an appeal still quoting this number today is quoting a charity the Commission no longer registers.
- Charity number
- 1149099
- Status
- Removed
- Type
- Other
- Registered
- 25 September 2012
- Removed
- 17 June 2024
- Latest income
- £19,317
- Latest spending
- £22,674
- Accounts to
- 1 April 2023
What it does
CDKL5 UK is a UK based charity that has been set up to raise awareness and vital funds for the global research effort. The trustees of CDKL5 UK are made up of parents living with a child with CDKL5 as well as family and friends who all share the same goal. CDKL5 is classed as a orphan disease, as it affects a small percentage of the population.
In the charity's own words, as filed with the Commission.
About this record
From the Charity Commission's register of England and Wales, republished nightly under the Open Government Licence. The Commission does not regulate Scotland or Northern Ireland, which keep their own registers. Figures are as the charity last filed them, not as audited by us — browse the whole register, including the charities removed from it.